{"id":150135,"date":"2022-07-03T17:10:10","date_gmt":"2022-07-03T20:10:10","guid":{"rendered":"https:\/\/www.hoymercedes.com.ar\/principal\/?p=150135"},"modified":"2022-07-03T17:18:58","modified_gmt":"2022-07-03T20:18:58","slug":"declaran-el-23-de-junio-dia-local-para-la-concientizacion-y-difusion-del-sindrome-de-dravet","status":"publish","type":"post","link":"https:\/\/www.hoymercedes.com.ar\/principal\/2022\/07\/03\/declaran-el-23-de-junio-dia-local-para-la-concientizacion-y-difusion-del-sindrome-de-dravet\/","title":{"rendered":"Declaran el 23 de junio d\u00eda local para la concientizaci\u00f3n y difusi\u00f3n del s\u00edndrome de Dravet"},"content":{"rendered":"\n<p>Alterando el orden del d\u00eda, en la sesi\u00f3n ordinaria del lunes pasado, los concejales aprobaron un proyecto que declara el 23 de junio como el D\u00eda del S\u00edndrome de Dravet y que busca la difusi\u00f3n de una patolog\u00eda tambi\u00e9n conocida como \u00abEpilepsia Miocl\u00f3nica Severa de la Infancia\u00bb, una forma \u00abrara y catastr\u00f3fica de epilepsia intratable que comienza en el primer a\u00f1o de vida, con una incidencia estimada de 1 cada 16.000 nacimientos\u00bb.  <\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"533\" data-attachment-id=\"150029\" data-permalink=\"https:\/\/www.hoymercedes.com.ar\/principal\/dravet-1\/\" data-orig-file=\"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-1.jpg\" data-orig-size=\"800,533\" data-comments-opened=\"0\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;1656358509&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;1&quot;}\" data-image-title=\"dravet 1\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-1.jpg\" src=\"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-1.jpg\" alt=\"\" class=\"wp-image-150029\" srcset=\"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-1.jpg 800w, https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-1-630x420.jpg 630w, https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-1-150x100.jpg 150w, https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-1-700x465.jpg 700w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/figure>\n<\/div>\n\n\n<p>Qui\u00e9n explic\u00f3 los alcances del proyecto fue la Concejal y Psic\u00f3loga Claudia Fraile. La idea de la ordenanza aprobada en la sesi\u00f3n del Concejo Deliberante es establecer un d\u00eda para la sensibilizaci\u00f3n y concientizaci\u00f3n de un s\u00edndrome \u00abpoco frecuente\u00bb, pero que \u00abexiste\u00bb y que en nuestra ciudad hay peque\u00f1os que la padecen. Por eso, la intenci\u00f3n es que profesionales y vecios conozcan la patolog\u00eda para acompa\u00f1ar a las familias y conozcan c\u00f3mo actuar ante peque\u00f1os con la patolog\u00eda. Mientras tanto, se espera que la Ley Nacional se establezca ya que hay una media sanci\u00f3n en Diputados. <\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"aligncenter size-full\"><img loading=\"lazy\" decoding=\"async\" width=\"800\" height=\"533\" data-attachment-id=\"150028\" data-permalink=\"https:\/\/www.hoymercedes.com.ar\/principal\/dravet-2\/\" data-orig-file=\"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-2.jpg\" data-orig-size=\"800,533\" data-comments-opened=\"0\" data-image-meta=\"{&quot;aperture&quot;:&quot;0&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;1656358152&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;0&quot;,&quot;iso&quot;:&quot;0&quot;,&quot;shutter_speed&quot;:&quot;0&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;1&quot;}\" data-image-title=\"dravet 2\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-2.jpg\" src=\"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-2.jpg\" alt=\"\" class=\"wp-image-150028\" srcset=\"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-2.jpg 800w, https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-2-630x420.jpg 630w, https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-2-150x100.jpg 150w, https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-2-700x465.jpg 700w\" sizes=\"auto, (max-width: 800px) 100vw, 800px\" \/><\/figure>\n<\/div>\n\n\n<p>Luego de la aprobaci\u00f3n de la ordenanza, la presidenta Evangelina Cabral invit\u00f3 a la madre de la peque\u00f1a que tiene este sindrome y que recientemente vinieron a vivir a Mercedes para que la ni\u00f1a pueda continuar sus estudios secundarios. Es as\u00ed que la madre, oriunda de Suipacha, agradeci\u00f3 y resalt\u00f3 el acompa\u00f1amiento a partir del establecimiento de la fecha para la concientizaci\u00f3n y difusi\u00f3n sobre el Sindrome de Dravet. (<a rel=\"noreferrer noopener\" href=\"https:\/\/dravetfoundation.eu\/sobre-dravet\/?gclid=CjwKCAjw_ISWBhBkEiwAdqxb9o8iM6ocwfDxzw0mGKBsreQ-1Ek9osBW8ogSfCr6TmxigBb5sasaJBoCk6AQAvD_BwE\" data-type=\"URL\" data-id=\"https:\/\/dravetfoundation.eu\/sobre-dravet\/?gclid=CjwKCAjw_ISWBhBkEiwAdqxb9o8iM6ocwfDxzw0mGKBsreQ-1Ek9osBW8ogSfCr6TmxigBb5sasaJBoCk6AQAvD_BwE\" target=\"_blank\">M\u00e1s informaci\u00f3n sobre el Sindrome hacer click aqu\u00ed<\/a>)<\/p>\n\n\n\n<figure class=\"wp-block-embed is-type-video is-provider-youtube wp-block-embed-youtube wp-embed-aspect-16-9 wp-has-aspect-ratio\"><div class=\"wp-block-embed__wrapper\">\n<span class=\"embed-youtube\" style=\"text-align:center; display: block;\"><iframe loading=\"lazy\" class=\"youtube-player\" width=\"1200\" height=\"675\" src=\"https:\/\/www.youtube.com\/embed\/hbERZvYqx6E?version=3&#038;rel=1&#038;showsearch=0&#038;showinfo=1&#038;iv_load_policy=1&#038;fs=1&#038;hl=es-ES&#038;autohide=2&#038;wmode=transparent\" allowfullscreen=\"true\" style=\"border:0;\" sandbox=\"allow-scripts allow-same-origin allow-popups allow-presentation allow-popups-to-escape-sandbox\"><\/iframe><\/span>\n<\/div><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>Declaran el 23 de junio d\u00eda local para la difusi\u00f3n del s\u00edndrome de Dravet<\/p>\n","protected":false},"author":1,"featured_media":150029,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2},"_wpas_customize_per_network":false,"jetpack_post_was_ever_published":false},"categories":[18286],"tags":[18411,831],"class_list":["post-150135","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-hcd-mercedes","tag-aprobacion-ordenanza","tag-hcd-mercedes","generate-columns","tablet-grid-50","mobile-grid-100","grid-parent","grid-50"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-content\/uploads\/2022\/06\/dravet-1.jpg","wps_subtitle":"En la sesi\u00f3n del HCD","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/posts\/150135","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/comments?post=150135"}],"version-history":[{"count":0,"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/posts\/150135\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/media\/150029"}],"wp:attachment":[{"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/media?parent=150135"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/categories?post=150135"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.hoymercedes.com.ar\/principal\/wp-json\/wp\/v2\/tags?post=150135"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}